Lived Experience Forum

[eth]

Hi @Mazarita @outlander @greenpea @Shaz51 @Appleblossom @CheerBear @Sophia1 @Teej  @Faith-and-Hope @PeppiPatty and anyone else I forgot to tag.  I"M BACK!!!  Got in last night.

Hoping you've all been ok since I went away and looking forward to catching up with you all.  Thanks for the shout out @Mazarita.  Lots of stories to tell but I wanted to say hello and good morning before I go thru' the 230plus notifications in my inbox.  (not all from SANE!).

Seems we have a new look on the forums.  Hoping it's user friendly.

[Appleblossom]

Yay @eth Glad you had a great time. Love to hear about it.

@Mazarita  bloomin sleep cycles ...lol

@greenpea you are looking svelte greenie.

@outlander yeah ..washing ... eye roll .. lol

@Shaz51 Hi Bella

Have a good day. 

I was cheered up a lot last night at choir.

[CheerBear]

Hi everyone 👋

Great to see you back @eth! Hope you had a fab time and you settle back at home well ☺

[Teej]

Lovely to see you back @eth. I hope your email list reduces quickly (they always seem overwhelming . Here’s hoping you had a great time away. 💜🤗

just want to drop this off for @Exoplanet too. Lovely to see you on the rave thread 🤗💜

and it was so good to read you have a gentle caring person who listens to you. 

[Mazarita]

Hey @eth, so good to see you! 

That's a few emails you've got to dig through there!

Yes, new look forum. I find it user friendly. But there are a bunch of tech issues that are slowly being worked through by admin.

Great to hear you have lots of stories to tell, look forward to them when you are ready. 

Will keep this one short for the time being because I've only just woken up. All nighter with me last night and still grabbing sleep this afternoon to deal with the fatigue fallout.

Other than that, I am less depressed than before you left, partly due to the new med kicking in over the past week or so. 

Hope you had a brilliant time in your travels! 

[Shaz51]

great to see you back @eth 

hello @Mazarita, @Teej, @CheerBear, @Appleblossom

[CheerBear]

Hiya @Shaz51 👋 How's your day going? Hope it's had some good in it ❤

[Shaz51]

very mixed day today @CheerBear 

how is your day going xx

ended up no work today ,

Mr shaz started the day with a headache so when we finally got home from the specialist , he went to bed and is still asleep

just had a cuppa and thinking of all the things the specialist told me

[CheerBear]

That sounds like a lot for you today @Shaz51. Are you OK?

My day is going well enough thanks ☺

[Shaz51]

hi @CheerBear , will be ok

just had a cuppa and thinking of all the things the specialist told me

amm here goes

• Kidney stable at 24%
• Have Diabetes
• Cholestrol is too high
• have to drink 2 an a half litres of water a day
• increase the meds I am on now
• Have Vesicoureteral Reflux
• arthritis / Hiatus Hernia

but apart from this , the specialist is happy but we need to get these things under control or else , so another specialist appt on the 5th july -- don`t need to see the kidney specialist for 6 months